It is with great relief that I'm able to write that the surgery is done. It is done and Dezi can begin healing. The surgery took around 5 hours and the waiting was difficult.
Our boy had his stomach, small intestine, colon, spleen and tip of the liver in his chest cavity. He barely had any diaphragmatic tissue and they created a diaphragm from gortex, stitching it to the existing tissue and securing it in place by knotting it to the ribs. They did all of this using little cameras which were inserted in the tiniest of incisions that will heal beautifully, leaving little to no evidence of ever having been there. With all of those organs up there, his heart had deviated and smooshed to the far right of his chest cavity. It will start moving over, slowly back to where it belongs.
Holy shit, right? I've been thinking this surgery for 20 weeks and am still shocked by the reality of how his little body formed.
Dezi's surgeon, Dr. Aspelund, is my new hero. She is European and appears to be close to me in age. I'm humbled and grateful and awed by the work that she does.
My own heart feels different now too. With news of smooth surgery, I felt a great weight lift from my body--the letting go of months of anxiety. And while the journey ahead is still far from over, I feel like I can be fully present to help this little fighter on his road to recovery.
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6 comments:
holy crazy. that description of desi's surgury is hard to take in even as i read it over and over. what an incredible process.
doug has been asking if there is any news from you and desi all day - i'm happy to tell him that things continue to be positive. lots of love
You are amazing, Kali. I am so proud of you, and of Desmond. It is such a huge relief that the surgery is done and went smoothly. Amazing. I feel you both so deeply, and hold you in a deep place in my heart on this journey. Know that I'm here. Love, Gal
oh this news let me exhale! i've been thinking of you and yours throughout these last several weeks--amazing to hear what Dezi has begun to conquer. You are still in my thoughts, and will be. Congratulations on this amazing and courageous little creature that you have! love, Emma
phew #2.
I cried reading this. I am so amazed by your ability to put this into beautiful words. He was and is in my heart, and I am praying for a quick and easy recovery. I am proud of your surgeon too and I am not even there, these people are heroes, thank goodness for modern medicine, and for the dedication of one human to others...All my love, Gretchen!!
S & K,
I can only imagine the emotional roller coaster you've both been on. I'm so happy for Desmond, that he has you guys to take care of him. You guys are in my prayers!
Look forward to meeting him!
e
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